Thursday, February 23, 2017

EZRA's switch just came on in the past 2 week and in full speed ahead!

Oh my, I do not know if this is normal in terms of child development terms but in the past two weeks, his skills and awareness just took a turn for good and it felt like everything came together in days! I had been in constant discussion with MOH and we both marvel at what he has been able to do… and it all just came from the day he started imitating our words when prompted. Now he is pretty much running about happily and looking out to see if we are around… because is we aren't he will panic and start to have separation anxiety. He is vey attached to mommy and she will always be his first preference as I take a back seat (which I am totally fine with).

Amazing how we just started the GFCF diet and in matter of two days it had effect, perhaps it was just timing as I do not have the facts to say it was from the diet change but personally, I think it is a change that probably resulted from the whole overall work we put it ie. ABA therapy, 3 days home based daycare, weekend swim and activities outside of house and the hours of fun therapy work through play and interaction that we did at night and morning! I cannot say it was an easy road, we just had to put in hard work of getting on our knees to get onto his 'stage' to get the desired eye contact and attention, constant calls for his name, sounds to get his attention, nursery rhymes, turn taking, pointing cues, numbers/letters play, puzzles, controlling his stimming (tip toeing, laying on floor with toys with wheels, head shaking).

The past two weeks has been great especially with MOH taking 6 weeks off work to help with this important time in his developmental life. I am still holding my reservations but I do see progress by leaps and bounds and everyday I wake up with enthusiasm to see if there are any small surprises hidden for us.

He started saying itchy when he had a mozzy bite after me and grandma saying it a few times when I was feeding him. He also started somersault rolling over his head and onto his back just like any other toddler would experiment with play. Bubbles play are more active now. Him staring into the direction when I say 'look', 'wow' or ask him "what is it?". In ABA, his tacting is amazing to the count of 42 in just a two hour session according to Ebonee. She said he should be ready for the next step.

Saturday, February 18, 2017

The power of knowledge is within our fingers and just a few keystrokes away...

The feeling of not knowing what is ahead is so draining to one's soul.

For the fear of my son not being able to live independently. So yes, the journey of us recovering our son back from mild autism had begun November 2016. After two months of therapy, we do see slight results, but nothing to warrant that he'll be fine in they long run. Since then, me and my wife has been doing so much research one can find on the internet. Each night I stay up till 2-3am just to hit the search on anything that can potentially give us a four letter word.... HOPE.

It wasn't until two days ago when our boy started to echolalia and imitate our words each try with more precision that it gave me a booster of hope. But I still had my reservations, I still had to find out more...so I found out more about biomedication which is a change of diet for treating his disorder and behavior. It kind of made sense since we saw days where he looked in great shape and alertness but then there were days where he just wasn't showing improvement or the tenacity to go through therapy. Then it hit me that it could be the diet we so happen to feed him gluten free for a few days which could have led to his positive signs and vice versa days where we fed him more wheat based foods. For now, we cannot say we will embark on 100% casein free since he loves his milk. There is hope in this diet regiment I feel. Well Jenny McCarthy and a load of other testimonials had given me the push and positivity in this. Perhaps, it was the vaccination after all... But we cannot be sure since we are not experts in the field of science and medical.

Let's wait and see...day one 18 Feb 2017.

If the day comes that we find full recovery in our son, I like to think that Google saved my son from autism.

DC


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