if 10 or twenty years from now you asked me "when did you first noticed Ezra coming out of the fog and recovering?", I would answer you June 4th 2017. It was a day after Mei-Li and Jeremy's wedding. We had woken up at our hotel and proceeded downstairs to have our buffet breakfast. Then we decided we would join the family in Damansara Jaya for dim sum. It was only upon getting home after the family affair, I had noticed him being responsive and more open to socializing and play. It felt like lesser of a chore to get his attention and interest in playing. The next few days were amazing! It was sort of like Ezra exploding with progress within a few days until we left back to Auckland. How did it feel? Bloody liberating and I felt the weight of a thousand rice sacks relieved off my shoulders!
Everyday I woke up and continuously played and stimulated his response and everyday was amazing as if he just got the idea of communicating. He started more with "I want ___", tacting items everywhere, constant "mommy", self feeding felt like he mastered within a week, mote motivation to eat our food and food surrounding him, singing along nursery rhymes were much more consistent, the understanding of "wait & "stop" whilst being out in the mall, more consistent pointing exercises, turning around his head upon hearing "look", and probably heaps more which i got too caught in the moment of note down but I will eventually. You can probably tell how elated I am about his progress and I am very confident that our boy is slowly returning back to us and that the diet is finally showing it's wonders now, it's just that I can't believe how fast everything is coming at once!
Sunday, June 11, 2017
Thursday, April 6, 2017
6th April 2017
Today I had my very first tag you're it (I got you!) play with my son and wife, and it felt DAMN good! liberating. Almost 2 years and 3 months on and we had our first chase around shooting "I am coming for you" both us parents and him did!
Also, for the very first time, he asked "write 1, write 2, write 3, write triangle, write circle, write heart" with the magnetic scribble board. Blew me away! And I made sure I replied "good asking"
I continue to pray for his recovery every night and all this little signs of his progress each day or be it week, sure gives us the motivation to persevere on. We will not let this this called immune deficiency defeat us, our boy was normal and we are so sure of that! KIA KAHA
Also, for the very first time, he asked "write 1, write 2, write 3, write triangle, write circle, write heart" with the magnetic scribble board. Blew me away! And I made sure I replied "good asking"
I continue to pray for his recovery every night and all this little signs of his progress each day or be it week, sure gives us the motivation to persevere on. We will not let this this called immune deficiency defeat us, our boy was normal and we are so sure of that! KIA KAHA
Monday, April 3, 2017
The day my son pointed when we said..."point to..."
I just need to take time off to write this for my journal for one day when I relook at it again, I know it will bring me to tears….he is now 2 years 3 months soon and this will be his first time pointing his index finger when we prompt or question him. It was a routine dinner with him on the high chair. Me, the wife and granny were still eating and all of a sudden I just thought of asking him to point, where's Granny? It took two times of asking before he actually points…we all followed with a yay and a clap excitedly! Right after that it was a series of asking him to 'point to', clock, lights, fan, mom's hair, nose, bottle, toys, couch etc! It was so uplifting to me how he managed to point out FIRST TIME EVER!
Wednesday, March 29, 2017
The day my boy pointed while playing
It's interesting how an act that other parents with typical kids would probably wouldn't think would be significant but to parents with developmental delay children, it would be such a marvelous milestone!
Yes! He did finally point and said there on his own will whilst playing with alphabet stacking blocks with me and granny.
That feeling I have been waiting for 2 years and almost 3 months had finally come! I am elated as you can tell!!!
He is showing such great progress with preschool , therapy and his peers. Small steps but we will get there eventually, I have high hopes on that!
Sent from my iPhone
Yes! He did finally point and said there on his own will whilst playing with alphabet stacking blocks with me and granny.
That feeling I have been waiting for 2 years and almost 3 months had finally come! I am elated as you can tell!!!
He is showing such great progress with preschool , therapy and his peers. Small steps but we will get there eventually, I have high hopes on that!
Sent from my iPhone
Thursday, February 23, 2017
EZRA's switch just came on in the past 2 week and in full speed ahead!
Oh my, I do not know if this is normal in terms of child development terms but in the past two weeks, his skills and awareness just took a turn for good and it felt like everything came together in days! I had been in constant discussion with MOH and we both marvel at what he has been able to do… and it all just came from the day he started imitating our words when prompted. Now he is pretty much running about happily and looking out to see if we are around… because is we aren't he will panic and start to have separation anxiety. He is vey attached to mommy and she will always be his first preference as I take a back seat (which I am totally fine with).
Amazing how we just started the GFCF diet and in matter of two days it had effect, perhaps it was just timing as I do not have the facts to say it was from the diet change but personally, I think it is a change that probably resulted from the whole overall work we put it ie. ABA therapy, 3 days home based daycare, weekend swim and activities outside of house and the hours of fun therapy work through play and interaction that we did at night and morning! I cannot say it was an easy road, we just had to put in hard work of getting on our knees to get onto his 'stage' to get the desired eye contact and attention, constant calls for his name, sounds to get his attention, nursery rhymes, turn taking, pointing cues, numbers/letters play, puzzles, controlling his stimming (tip toeing, laying on floor with toys with wheels, head shaking).
The past two weeks has been great especially with MOH taking 6 weeks off work to help with this important time in his developmental life. I am still holding my reservations but I do see progress by leaps and bounds and everyday I wake up with enthusiasm to see if there are any small surprises hidden for us.
He started saying itchy when he had a mozzy bite after me and grandma saying it a few times when I was feeding him. He also started somersault rolling over his head and onto his back just like any other toddler would experiment with play. Bubbles play are more active now. Him staring into the direction when I say 'look', 'wow' or ask him "what is it?". In ABA, his tacting is amazing to the count of 42 in just a two hour session according to Ebonee. She said he should be ready for the next step.
Amazing how we just started the GFCF diet and in matter of two days it had effect, perhaps it was just timing as I do not have the facts to say it was from the diet change but personally, I think it is a change that probably resulted from the whole overall work we put it ie. ABA therapy, 3 days home based daycare, weekend swim and activities outside of house and the hours of fun therapy work through play and interaction that we did at night and morning! I cannot say it was an easy road, we just had to put in hard work of getting on our knees to get onto his 'stage' to get the desired eye contact and attention, constant calls for his name, sounds to get his attention, nursery rhymes, turn taking, pointing cues, numbers/letters play, puzzles, controlling his stimming (tip toeing, laying on floor with toys with wheels, head shaking).
The past two weeks has been great especially with MOH taking 6 weeks off work to help with this important time in his developmental life. I am still holding my reservations but I do see progress by leaps and bounds and everyday I wake up with enthusiasm to see if there are any small surprises hidden for us.
He started saying itchy when he had a mozzy bite after me and grandma saying it a few times when I was feeding him. He also started somersault rolling over his head and onto his back just like any other toddler would experiment with play. Bubbles play are more active now. Him staring into the direction when I say 'look', 'wow' or ask him "what is it?". In ABA, his tacting is amazing to the count of 42 in just a two hour session according to Ebonee. She said he should be ready for the next step.
Saturday, February 18, 2017
The power of knowledge is within our fingers and just a few keystrokes away...
The feeling of not knowing what is ahead is so draining to one's soul.
For the fear of my son not being able to live independently. So yes, the journey of us recovering our son back from mild autism had begun November 2016. After two months of therapy, we do see slight results, but nothing to warrant that he'll be fine in they long run. Since then, me and my wife has been doing so much research one can find on the internet. Each night I stay up till 2-3am just to hit the search on anything that can potentially give us a four letter word.... HOPE.
It wasn't until two days ago when our boy started to echolalia and imitate our words each try with more precision that it gave me a booster of hope. But I still had my reservations, I still had to find out more...so I found out more about biomedication which is a change of diet for treating his disorder and behavior. It kind of made sense since we saw days where he looked in great shape and alertness but then there were days where he just wasn't showing improvement or the tenacity to go through therapy. Then it hit me that it could be the diet we so happen to feed him gluten free for a few days which could have led to his positive signs and vice versa days where we fed him more wheat based foods. For now, we cannot say we will embark on 100% casein free since he loves his milk. There is hope in this diet regiment I feel. Well Jenny McCarthy and a load of other testimonials had given me the push and positivity in this. Perhaps, it was the vaccination after all... But we cannot be sure since we are not experts in the field of science and medical.
Let's wait and see...day one 18 Feb 2017.
If the day comes that we find full recovery in our son, I like to think that Google saved my son from autism.
DC
Sent from my iPhone
For the fear of my son not being able to live independently. So yes, the journey of us recovering our son back from mild autism had begun November 2016. After two months of therapy, we do see slight results, but nothing to warrant that he'll be fine in they long run. Since then, me and my wife has been doing so much research one can find on the internet. Each night I stay up till 2-3am just to hit the search on anything that can potentially give us a four letter word.... HOPE.
It wasn't until two days ago when our boy started to echolalia and imitate our words each try with more precision that it gave me a booster of hope. But I still had my reservations, I still had to find out more...so I found out more about biomedication which is a change of diet for treating his disorder and behavior. It kind of made sense since we saw days where he looked in great shape and alertness but then there were days where he just wasn't showing improvement or the tenacity to go through therapy. Then it hit me that it could be the diet we so happen to feed him gluten free for a few days which could have led to his positive signs and vice versa days where we fed him more wheat based foods. For now, we cannot say we will embark on 100% casein free since he loves his milk. There is hope in this diet regiment I feel. Well Jenny McCarthy and a load of other testimonials had given me the push and positivity in this. Perhaps, it was the vaccination after all... But we cannot be sure since we are not experts in the field of science and medical.
Let's wait and see...day one 18 Feb 2017.
If the day comes that we find full recovery in our son, I like to think that Google saved my son from autism.
DC
Sent from my iPhone
Sunday, October 23, 2016
21 October 2016, a huge sigh of relief
On this day, our little boy showed a lot of response and ability to imitate us and others.
More eye contact, ending the nursery rhymes in his own baby babble, stacking up blocks, stacking the coloured rings, putting away and giving things is just the few to name.
I prayed two nights ago for signs and it came true. God bless
Sent from my iPhone
More eye contact, ending the nursery rhymes in his own baby babble, stacking up blocks, stacking the coloured rings, putting away and giving things is just the few to name.
I prayed two nights ago for signs and it came true. God bless
Sent from my iPhone
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